My son, Grayson, was diagnosed with PANDAS in January of 2017 while we were living in Raleigh, NC. Our journey to the diagnosis was short and surprising. He was a very healthy, active, and easy going five year old and overnight developed a behavior that seemed a lot like an
My sister has a background in marketing and strategy. She’s been an incredible resource for me when getting PRAI off the ground. I have always been the type to just start something without really spending the time to ask myself where it is that I want to go, so her
Special Screening of My Kid Is Not Crazy to benefit PANS Research and Advocacy Initiative Help us spread the word! Download and print the flyer to share. The more doctors, educators, legislatures, families and mental health professionals that come see this movie, the closer we are to finding real solutions
When I first had my son 4 years ago I had the same fairytale picture of motherhood that most mother’s do. I pictured the playground, and the park. Watching his first play. The first time he got on the school bus. I never anticipated the food intolerances. The frequent infections.
At 27 years old, my life has been flipped upside down by a new, albeit correct diagnosis: PANS. It stands for Pediatric Acute Onset Neuropsychiatric Syndrome. My psychiatrist figured out I had PANS after a long bout with mono caused me to have extreme psychiatric symptoms. And strangely, when I took anti-inflammatories such
Our beautiful, jovial, spirited son Dominic was diagnosed with PANS at age 6 by one of the most trusted specialists in the field, Dr T. His sudden onset began early October of the same year. Our seemingly perfect child went to bed and woke up the following day with dilated
Up until a year ago I was told that my son Tyler had Tourette’s, OCD, Anxiety, and ADHD/ADD. Of course this was mind-blowing and hard to process as parents of what appeared to be a healthy 7 year old at the time. When he was 4 years old he had
One morning after spending an entire night sobbing about the reality that we had a child who suffered so greatly with PANS, I slumped on the couch and told my husband that for the first time since our son was born, I was starting to lose hope. I had spent