We could really use your support. If you’re unfamiliar with who we are, PRAI stands for Pediatric Research and Advocacy Initiative. You might recognize us from our work in North Carolina and Virginia. But after raising $150k in 90 days last year, we made a major shift towards becoming a
Many of us are so incredibly nervous about the 20/20 story tonight on PANDAS. Will they lean into the controversy piece? Will they mention PANS, Lyme and Mast Cell Disease? Will they act as if a 10 day course of penicillin at onset is the ultimate answer and share the
I know we’ve been hounding you. How many Twitter messages and emails have you received from PANDAS parents since last nights episode aired? I can only imagine it’s been quite a few. While I can assure you no one in our community is celebrating knowing you and your daughter have
I’ll give fair warning. This story is a Jesus-y one. Read at your own risk! He is Risen. Those 3 words have popped up on my text strings and FB feed all morning. And I admit, they feel a bit cliche. “He is Risen.” But it’s Easter. I mean, I
My sister has a background in marketing and strategy. She’s been an incredible resource for me when getting PRAI off the ground. I have always been the type to just start something without really spending the time to ask myself where it is that I want to go, so her
When I first had my son 4 years ago I had the same fairytale picture of motherhood that most mother’s do. I pictured the playground, and the park. Watching his first play. The first time he got on the school bus. I never anticipated the food intolerances. The frequent infections.
At 27 years old, my life has been flipped upside down by a new, albeit correct diagnosis: PANS. It stands for Pediatric Acute Onset Neuropsychiatric Syndrome. My psychiatrist figured out I had PANS after a long bout with mono caused me to have extreme psychiatric symptoms. And strangely, when I took anti-inflammatories such
Our beautiful, jovial, spirited son Dominic was diagnosed with PANS at age 6 by one of the most trusted specialists in the field, Dr T. His sudden onset began early October of the same year. Our seemingly perfect child went to bed and woke up the following day with dilated