At 27 years old, my life has been flipped upside down by a new, albeit correct diagnosis: PANS. It stands for Pediatric Acute Onset Neuropsychiatric Syndrome. My psychiatrist figured out I had PANS after a long bout with mono caused me to have extreme psychiatric symptoms. And strangely, when I took anti-inflammatories such
Our beautiful, jovial, spirited son Dominic was diagnosed with PANS at age 6 by one of the most trusted specialists in the field, Dr T. His sudden onset began early October of the same year. Our seemingly perfect child went to bed and woke up the following day with dilated
Up until a year ago I was told that my son Tyler had Tourette’s, OCD, Anxiety, and ADHD/ADD. Of course this was mind-blowing and hard to process as parents of what appeared to be a healthy 7 year old at the time. When he was 4 years old he had
One morning after spending an entire night sobbing about the reality that we had a child who suffered so greatly with PANS, I slumped on the couch and told my husband that for the first time since our son was born, I was starting to lose hope. I had spent
- 30th March 2018
A better way
- 7th February 2016
Dominic’s Story
- 8th February 2016
Alyse’s Story
- 3rd February 2016
Tyler’s Story
- 31st January 2016
Enough Looking, Just Leap
- 12th February 2019
And then came CBT…
- 13th September 2018
PRAI 5k presented by…
- 7th August 2018
Dear PANS Facebook Admins,
- 22nd July 2018
How to Register and Fundraise for Virtual Walk
- 20th July 2018
PANDAS on 20/20: A really great start
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Enough Looking, Just Leap
- 3Mon, 08 Feb 2016 12:00:28 -040008 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016
Tyler’s Story
- 72912 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016
Dominic’s Story
- 82912 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016
Alyse’s Story
- 252912 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016
Being THAT family, the new normal
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