• Neuroimmune
  • About Us
  • Research
  • For Families
  • Volunteer
  • Donate

More
February 8, 2016 by Jessica Gavin in Real Life Story

Alyse’s Story

At 27 years old, my life has been flipped upside down by a new, albeit correct diagnosis: PANS.  It stands for Pediatric Acute Onset Neuropsychiatric Syndrome. My psychiatrist figured out I had PANS after a long bout with mono caused me to have extreme psychiatric symptoms.  And strangely, when I took anti-inflammatories such

Read More Comments are off
More
February 7, 2016 by Jessica Gavin in Real Life Story

Dominic’s Story

Our beautiful, jovial, spirited son Dominic was diagnosed with PANS at age 6 by one of the most trusted specialists in the field, Dr T. His sudden onset began early October of the same year. Our seemingly perfect child went to bed and woke up the following day with dilated

Read More Comments are off
More
February 3, 2016 by Jessica Gavin in Real Life Story

Tyler’s Story

Up until a year ago I was told that my son Tyler had Tourette’s, OCD, Anxiety, and ADHD/ADD. Of course this was mind-blowing and hard to process as parents of what appeared to be a healthy 7 year old at the time. When he was 4 years old he had

Read More Comments are off
More
January 31, 2016 by Jessica Gavin in Real Life Story

Enough Looking, Just Leap

One morning after spending an entire night sobbing about the reality that we had a child who suffered so greatly with PANS, I slumped on the couch and told my husband that for the first time since our son was born, I was starting to lose hope. I had spent

Read More Comments are off
Load more
  • Popular
  • Latest
  • Comments
  • 30th March 2018

     A better way

  • Dominic’s Story 7th February 2016

     Dominic’s Story

  • Alyse’s Story 8th February 2016

     Alyse’s Story

  • Tyler’s Story 3rd February 2016

     Tyler’s Story

  • Enough Looking, Just Leap 31st January 2016

     Enough Looking, Just Leap

  • And then came CBT… 12th February 2019

     And then came CBT…

  • PRAI 5k presented by… 13th September 2018

     PRAI 5k presented by…

  • 7th August 2018

     Dear PANS Facebook Admins,

  • 22nd July 2018

     How to Register and Fundraise for Virtual Walk

  • 20th July 2018

     PANDAS on 20/20: A really great start

  • Enough Looking, Just Leap 312829 Jpm2000000pmMon, 08 Feb 2016 12:00:28 -040016 2016

     Enough Looking, Just Leap

  • Tyler’s Story 3Mon, 08 Feb 2016 12:00:28 -040008 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016

     Tyler’s Story

  • Dominic’s Story 72912 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016

     Dominic’s Story

  • Alyse’s Story 82912 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016

     Alyse’s Story

  • 252912 FebruaryAmerica/New_YorkbMon, 08 Feb 2016 12:00:28 -0400000000pmMon, 08 Feb 2016 12:00:28 -040016 2016

     Being THAT family, the new normal

CATEGORIES

  • Children
  • Help Out
  • Ideas
  • Our Blog
  • Press
  • Real Life Story
  • Uncategorized
  • Volunteer

Tags

20/20 ADHD Aggression Anxiety Autism biomedical biomedical treatment Cognitive Behavioral Therapy diet Environment food intolerances Genetics holistic Immune Dysregulaiton IVIG Lisa Rinna Lyme Mast Cell Activation mental health Mold OCD PANDAS PANS PRAI PRAIfor500k Rodgers stories story strep supplements Tics

FOLLOW

Keep up with what we're doing at PRAI and learn more about PANS/PANDAS from families in your community.

ARCHIVES

  • February 2019
  • September 2018
  • August 2018
  • July 2018
  • April 2018
  • March 2018
  • October 2017
  • August 2017
  • January 2017
  • February 2016
  • January 2016

WHO WE ARE

  • Become a Fundraiser
  • PANS/PANDAS
  • For Families
  • Our People

GET INVOLVED

  • Make a Donation
  • Events
  • Blog
  • Our Financials

Our Information

(804) 615-5377

P.O. BOX 39
Onley, VA 23418

Tax ID #81-0744425

Find us elsewhere

© 2021 Pediatric Research and Advocacy Initiative. PRAI will not sell your information without permission.