There’s a lot of exciting opportunities to fund critical research projects for pediatric neuroimmune disorders. Pooling funds equals more robust projects and the opportunity to usher in scientific advancements.

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So tonight my neck is aching. Like, totally aching despite far too much Advil. I feel like I am carrying around 100 pounds of bricks on my back. I’m pretty sure I cried at least 10 times this week under the weight of this disease and the drama that comes along with being a part of this really emotionally charged community.
But here I am. Friday night and still working. I’m writing this post because somehow I have convinced myself that if I stop and enjoy life outside of the disease, that if take an hour long break that it’ll be one more hour that my family will suffer. Like sitting down during a marathon race to take a rest when I’m well aware of another 23 excruciating miles ahead of me does not really make for a peaceful rest. I have convinced …

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