From an anonymous PANS mom…. The details of our story are important, and yet not necessarily unique. There are too many families whose stories share the same refrain…just slightly different verses to the same song. After too many long, painful years suffering in silence, and medical and psychological professionals unable
I’m learning. I’m learning about marketing and advertising. I’m learning about how to say things as a “we” and not as an “I”. I’m learning that being open on my own personal social media platforms about my ideas about religion or my kids health, or my political affiliation can actually
While not all children with PANS and PANDAS need IVIG, the path for those who do can be nerve wracking and expensive. I’m a parent and not a medical doctor. This article is not to be construed as medical advice but rather topics to discuss with your doctor to help
Special Screening of My Kid Is Not Crazy to benefit PANS Research and Advocacy Initiative Help us spread the word! Download and print the flyer to share. The more doctors, educators, legislatures, families and mental health professionals that come see this movie, the closer we are to finding real solutions
When I first had my son 4 years ago I had the same fairytale picture of motherhood that most mother’s do. I pictured the playground, and the park. Watching his first play. The first time he got on the school bus. I never anticipated the food intolerances. The frequent infections.
- 30th March 2018
A better way
- 7th February 2016
Dominic’s Story
- 8th February 2016
Alyse’s Story
- 3rd February 2016
Tyler’s Story
- 31st January 2016
Enough Looking, Just Leap
- 12th February 2019
And then came CBT…
- 13th September 2018
PRAI 5k presented by…
- 7th August 2018
Dear PANS Facebook Admins,
- 22nd July 2018
How to Register and Fundraise for Virtual Walk
- 20th July 2018
PANDAS on 20/20: A really great start
- 312528 Jam2000000amTue, 12 Feb 2019 07:05:25 -040019 2016
Enough Looking, Just Leap
- 3Tue, 12 Feb 2019 07:05:25 -040012 FebruaryAmerica/New_YorkbTue, 12 Feb 2019 07:05:25 -0400000000amTue, 12 Feb 2019 07:05:25 -040019 2016
Tyler’s Story
- 72807 FebruaryAmerica/New_YorkbTue, 12 Feb 2019 07:05:25 -0400000000amTue, 12 Feb 2019 07:05:25 -040019 2016
Dominic’s Story
- 82807 FebruaryAmerica/New_YorkbTue, 12 Feb 2019 07:05:25 -0400000000amTue, 12 Feb 2019 07:05:25 -040019 2016
Alyse’s Story
- 252807 FebruaryAmerica/New_YorkbTue, 12 Feb 2019 07:05:25 -0400000000amTue, 12 Feb 2019 07:05:25 -040019 2016
Being THAT family, the new normal
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